I. Patience in my perspectives allowing time to take it's course, although all impactful changes happened over time and those changes in the works will eventually come to pass, I am a firm believer that when one is focused on the process of something the results will not solely matter yet the experience indeed will.
II. Not marginalizing people due to the lack of information, each person is an individual and it is important that they experience learning in a safe, supportive learning community. No one person should be the spokes person for a group of inviduals. In honor of World Aids Awareness month I am reminded of how people talk about Hiv/Aids and always reference Magic Johnson and label his status as the ideal situation, because he appears "cured" and looks healthy;yet everyones reality will not model his. Many ignore the facts that Mr. Johnson has been living with the virus for 22 years, his lifesyle includes regiments of excersing, clean eating and taking his medication.
III. Enabling families or systems to feel powerful and competent with knowledge . It is my belief in doing these things I will strengthen my skills in being a competent advocate for children and their families. This can be achieved through welcoming children and displaying respect for their families. As a child I would always look forward to my 3rd grade teacher standing in the doorway in the morning ready to greet each and every student by name, she smiled, gave high fives or pats on the back and made me feel excited about someone anticipating my arrival at school.
I strive to be a chapion for all children and their families. To fight with the gifts I have been given to speak up and out on behalf of those that struggle with doing so for themselves. It's a gift and a curse somethimes becuae there are times that the asistance can be taken as enabling however I view it as a fine line of gathering parents towards self suffiency.
Friday, December 18, 2015
Saturday, December 5, 2015
My Hypothetical Family Situation
Don't judge a book by it's cover, rang loudly in my ears as I sat on the floor in my bathroom with the pregnancy test in my hand and it read positive. On March 9 I found out I was pregnant. My life as a once knew it would forever be changed, a high school student, it's was my senior year i was ready to graduate, everyone always said i had a bright future ahead of me. Four mouths after finding out I was pregnant and the inital shock subsiding I not only found out the baby i was carrying was going to be a girl but would also be born with a birth defect called gastroschisis.
Gastroschisis is a birth defect of the abdominal (belly) wall. The baby’s intestines stick outside of the baby’s body, through a hole beside the belly button. The hole can be small or large and sometimes other organs, such as the stomach and liver, can also stick outside of the baby’s body.
Gastroschisis occurs early during pregnancy when the muscles that make up the baby’s abdominal wall do not form correctly. A hole occurs which allows the intestines and other organs to extend outside of the body, usually to the right side of belly button. Because the intestines are not covered in a protective sac and are exposed to the amniotic fluid, the bowel can become irritated, causing it to shorten, twist, or swell." (cdc, 2014
My belly grew larger and larger and my pregnany journey consisted of many doctor doctor appointments because of the baby's condition. There were so many test performed, I had to leave school early lots of times to make the doctor visits. While looking online at what to expect there were so many stories many in which scared me to read because i kept thinking what if my child's situation is worse.
In december I gave birth The defect was very complicated and no one knew how things would turn out. I remember the doctors letting me hold my precious baby and thinking all that i want to do was take the pain away from her.
Reference
Centers for Disease control and prevention (2014) Facts about Gastroschisis. Retrieved from http://www.cdc.gov/ncbddd/birthdefects/gastroschisis.html
Gastroschisis is a birth defect of the abdominal (belly) wall. The baby’s intestines stick outside of the baby’s body, through a hole beside the belly button. The hole can be small or large and sometimes other organs, such as the stomach and liver, can also stick outside of the baby’s body.
Gastroschisis occurs early during pregnancy when the muscles that make up the baby’s abdominal wall do not form correctly. A hole occurs which allows the intestines and other organs to extend outside of the body, usually to the right side of belly button. Because the intestines are not covered in a protective sac and are exposed to the amniotic fluid, the bowel can become irritated, causing it to shorten, twist, or swell." (cdc, 2014
My belly grew larger and larger and my pregnany journey consisted of many doctor doctor appointments because of the baby's condition. There were so many test performed, I had to leave school early lots of times to make the doctor visits. While looking online at what to expect there were so many stories many in which scared me to read because i kept thinking what if my child's situation is worse.
In december I gave birth The defect was very complicated and no one knew how things would turn out. I remember the doctors letting me hold my precious baby and thinking all that i want to do was take the pain away from her.
Reference
Centers for Disease control and prevention (2014) Facts about Gastroschisis. Retrieved from http://www.cdc.gov/ncbddd/birthdefects/gastroschisis.html
Subscribe to:
Posts (Atom)